Family-Professional Partners Institute
Partnership Profiles

Soon, you'll be able to meet some of the Institute's Family and Organizational Partners on this page. For now, here's what some of them have to say.

“The strength of the partnership was that it gave us a way to hear about an illness from a family that lives it. This experience will become a model for how our health plan can look at other chronically ill populations, finding ways to serve them better.”

"The Parent Advisory Group has opened our staff up to the concept of change. It provides a format for exploring new ideas for the practice… it has huge implications for the whole hospital.”

“The organization had first worried that a parent would come in with unrealistic ideas; this has not proved to be the case at all. Suggestions are appropriate and realistic.”

“The yield of the project would not have been as great, the interviews would not have gone in the same direction and the analysis would not have been as germane if our Family Partner had not been working with us.”

“The Institute's ongoing presence helped give the initiative structure. Our program had the tinder; the Institute provided the spark.”

"Without a Family Partner working with us, we would have lost the opportunity to educate this entire research group about how much a parent can contribute.”

Family Partners:

“Part of my role has been attending a health literacy group…I'm the only person there who is there as a parent. That has a powerful impact.”

“I presented the findings from a self-assessment about family-centered care – the students' perceptions of it, the faculty's point of view on teaching about it. The fact that we even had that conversation is huge.”

“Staff realizes that parents are not out to get them; it's not about what is working wrong but how to make the service better -- more fluid and productive.”

“Diabetes is so big… they had struggled to get their arms around it… I think they saw that having an insider can really make it work… Working makes me feel good, helps my confidence and self-esteem.”

“As a result of the partnership, the parents at this school were able to get the tiniest foot in the door…it continues to be well received and we should be able to do more.”

“The staff was really surprised by some of what they heard. It was positive for me professionally – I learned qualitative research and coding, which was a new skill."

Discover how the Institute's real-world family-professional partnerships are improving systems of care at all types of health organizations.

See full list of current and past partners.

- Hospitals, Pediatric Practices and Community Health Centers

- Health Plans

- Medical Schools, Schools of Public Health and Research Organizations

- Public Agencies

- Day & Residential Facilities