Making the Case for Coverage
Tips for Helping Children and Families Get the Benefits They Need from Their Health Plans: A Guide for Clinicians and Advocates
(2007)
The Family-Professional Partners Institute
Bringing Family Experience into Organizations that Shape Health Care for Children with Special Health Care Needs
(2006)
The Medical Home Partnership: Tips for Providers
Practical Tips for Physicians Caring for Children with Special Health Care Needs (2003; 2006 Edition Coming Soon)
The Medical Home Partnership: Tips for Families
Building a Home Base for Your Child with Special Health Care Needs (Second Edition, 2006)
Tools for Improving Quality of Care for Children with Special Health Care Needs (2002)
Paying the Bills
Tips for Families on Financing Health Care for Children with Special Needs (Second Edition, 1999)
Family-Centered Health Care Financing Systems for Children with Special Health Needs (1991)
Standards and Indicators of Quality Care for Children with Special Health Care Needs (1989)
Coordinating Care from Clinic to Community
Quality Standards for Serving Children and Families Affected by Environmental Lead Hazards (1998)
Indicators for Family-Centered Care in HIV Health Services for Children, Youth and Families (1994)
Measuring Quality Managed Care for Children with Special Health Care Needs (1998) Please note that the Shared Responsibilities Toolkit is available, above.
Summary of a Regional Survey of Families, Primary Care Providers & Managed Care Organizations in New England (1997)