Family Participation Work Group:
Mission Statement

The Family Participation Work Group promotes and supports the unique contributions families make to improving systems of care for children with special health care needs and their families. It builds and strengthens partnerships between family members and policymakers at all levels of public and private sector organizations that shape how services are financed and delivered.

Adopted, 2006

Back to Family Participation Work Group page

Co-Chairs:

Dalene Basden
Parent Professional Advocacy League (PAL)
ptahsw@verizon.net

Suzanne Gottlieb
MA Department of Public Health
suzanne.gottlieb@
state.ma.us

Reports:

Family Participation Work Group Interim Report, December 2003
This report provides a summary of the activities, recommendations, and policy statements of the Consortium’s Family Participation Work Group.

Mission & Policy Statements:

Family Participation Work Group Mission Statement
2006

Supporting Families to Participate in the Massachusetts Consortium for Children with Special Health Care Needs
This policy statement, presented by the Family Participation Work Group and endorsed by the Consortium Steering Committee, outlines the policy for financial support to family members not otherwise compensated for their time spent participating in Consortium activities.
Endorsed September 2003

Statement on Family Participation in Health Care Policy and Financing
A one-page statement on the unique contributions families can make to improve health care policy and financing, and why it is critical that they participate.
June 2003

Additional Resources: For articles, educational materials, and links to further information about family participation, please visit our Resource Center.

Other Work Groups:

Care Coordination

Medical Coverage Decision-Making

Medical Home

Transition to Adulthood